Saturday, January 24, 2009

You too can go to India with your insulin pump.



The title for this post is a working book title from a dear Divabetic friend of mine who traveled to India and decided she wanted to compile a book of diabetic anecdotes, stories, and general hilariousness surrounding experiences with this often crappy, lifelong battle with disease.

Here are some of my stories:

"Hi!" my glucose meter says cheerfully to me, like we haven't seen each other in weeks and have been having a sensational substituted relationship with each other's voicemail boxes. Ok, my meter doesn't actually speak, but the technology cannot be that far off. And, sadly when my meter does say HI, it spells it wrong (high) and it means I have not been taking care of myself.

The above picture is me and my pod. My pod prefers it's formal name though: Insulet Corporation Omnipod, a new wireless insulin pump system that allows you to be catheter-tube-free and receive all the benefits of 24-hour access to your life-sustaining medications, and it's waterproof, swim and shower away my dears!

I like the nickname "pod" this comes in handy when you are wearing it on your abdomen and in Thailand receiving a $4 massage and the practitioner exclaims "what this!? Is ok?" and I reply "Oh that, it's my ipod, you know for music." There is really no where else to go with this conversation so the massage continues, discretely avoiding a generous perimeter around the pod, and quiet questioning exchanges from my masseuse to my friend's masseuse next to me. Meanwhile my friend is laughing and likely missing out on her own abdominal massage.

Two things: truly the ipod markets can't be that far off from invasively inserting the hordes with internal music devices that send wave signals though your interstitial fluid straight to your inner cochlea and with a simple twitch or click of the tongue you can fully adjust your playlist or volume! [By the way I now officially have a medical alert ipod shuffle that was inscribed by Forest: Jane Silver / Type 1 Diabetic, which was ridiculously sweet of him, and now as a healthcare professional I will always look to an unconscious person's ipod for medical information!] Second thing, the diabetic devices department of any pharmaceutical research company is ever on the lookout for the next absolute coolest way to manage every aspect of your diabetes. So much so, in fact, that is widely known that diabetes medicine and supplies tops the charts for pharmaceutical funding in the United States, which means one very flooring, very serious, very sad reality: there is no monetary incentive to work for the cure for diabetes when all this money can be made simply palliating the struggle.

I'd rather have a brand spanking new insulin producing system installed in my pancreas please! I love my pancreas, I do, goddess bless it for all that it does do, and for not petering out until I was 17, I still remember birthday cakes and halloween candy! I also take on the philosophy that diabetes can be truly fantastic for you if you let it. Counting calories is so 90's anyway, let's all count carbs together! And fiber and simple sugars and protein. Diabetes re-directs you every time to a healthier diet and lifestyle. I have recently taken on a triathlon-a-day exercise program for myself: hahah, well this means I run with my dog in the mornings, commute to class and clinical on my bike and swim laps at the university gym in the evenings. But hey, that is sooo good for me, and I love it. Endorphins are a gorgeous bonus too.

That's the word on me, my pod and the diabetes we share.

ps. and, yes, I am bringing back the fanny pack.

2 comments:

Elizabeth Rose said...

You are absolutely adorable.
Wish I could join in on your triathlon a day exercise program. Sounds fantastic. Maybe in the spring....

Chanel said...

Fanny pack!! YES! jane, i love your writing style. It always makes me laugh and smile. I would suggest that you get a patent on that internal music device. And also add that it can read your mind based on the hormones floating around in your body.. so if I have excess amt of cortisol in my blood stream..my "iPod" will be able to sense that and turn on some loungy jazz music for me.